Why Write

The idea of writing a blog came to me after I was told I needed brain surgery to clip a growing aneurysm before it could cause me serious harm.  I was scared out of my wits and as I rang my family and friends to break the news, I realised I needed an easier way of keeping everyone up-to-date with how I was doing.  A blog seemed the natural outlet.  What began as a means to keep in touch with people I knew, slowly showed me I had powerful experiences to share, experiences that could be helpful to others.

Having endured and survived a stroke, two brain surgeries and two spinal injuries, I write now to share what I have experienced and learned as a means of helping myself put it all in context and in the sincere hopes it will assist others going through challenging times.
When I go to see a new doctor who has read my file, they always look surprised when they meet me. They expect to see someone with a walking aid, a serious limp or simply someone broken by circumstance. That’s not me.
I have worked hard to recover, done all the rehab I could in order to be able to live my best possible life – and it is this outcome that I want for anyone who has suffered a serious injury or illness.
All too often the medical profession gives up too soon, or insurance doesn’t cover all the treatment we need or our well-meaning loved ones coax us to go easy. So many of us quit too soon and live with limitations we might overcome if things were different.
I’m here as living proof that by taking control of your own life and your recovery, you can set your own meaningful goals, find personalised ways to rehabilitate and recover, so you too can make your best possible recovery, leading to your best possible life. After all, who knows your heart’s desires better than you.
So if you are in need of some company on your journey or know someone who would benefit from knowing they are not alone, follow my journey or share my blog, because together we are stronger and healthier.

Rehabilitation

I am quite excited.  Today I was finally assessed by the Rehabilitation Intake Officer and she agreed some rehab would be required, she then moved a few people about and got me a bed today.  The hospital I am in has its own rehab ward so I have just moved from one ward to another but it’s already showing huge potential as they assess how to ensure I will be strong and stable enough to go home.

I have a Rehabilitation Physician overseeing my care and a multidisciplinary rehab team to assess and develop a program for me.  The doctor has blown me away with his kind and thorough assessment and interest in not just my immediate needs but also looking at helping me better manage the legacy of my spinal injuries.  

I had two spinal injuries in my 20’s and early 30’s that left me in debilitating pain & some loss of function.  I was never offered rehab through either hospital where I had my surgeries and had to seek out options on my own.  Same again after a stroke six years ago, we had no health insurance for rehab so I didn’t get any and the hospital stroke unit was closed as it was Christmas holidays, so I was never assessed.  Some of my deficiencies were not diagnosed for over a year!

I have had to fight tooth and nail to get the help I did and I had to coordinate it all (from interstate).  

I now feel as though I’ve been granted some magical wish and may actually get the support I require and the opportunity to work holistically with a professional across each deficiency (or disability).  This could help set me onto an even stronger recovery path and I cannot wait to get started.